What a day! Ashling has surgery today to untether her spinal cord and to remove her sinus track that was open to the spine. Surgery was a success and she is resting comfortably in the PICU now. The next few days will be a challenge as she has to lay flat on her back.
We are so thankful for the surgeons today. If you look above you can see that Ashling spinal cord ends around L4 because it’s attached and pulled down at the bottom. Her spinal cord (and everyone else’s) should end at L1. Today, the surgeons released it and it sprung back to L1. They also removed a sinus track that was completely open and attached to her spine. It’s amazing she has had no symptoms of anything.
The recovery is a little tough but the prognosis is in 2 weeks from now she will be running around and as though her spinal cord was never attached.
She truly is an amazing miracle child! ❤️❤️❤️❤️❤️❤️❤️
I recently read an update on one of our travel family’s blog. It reminded me that it is time to update this blog! Sorry! It’s hard to believe Ashling has been home over 5 months.
We had such an amazing summer! A summer of fun- between cousins from Ireland, friends and a very long vacation to Nantucket- we were very lucky and thankful!
We have been back to real life for a month now. Thankfully, it’s going smoothly. Keira and Connor are happy to be back in 2nd and 1st grade and loving their millions of activities. Ashling loves Pre-K and is a learning a ton! Every morning, she is super excited to be at school and comes home talking about her new friends. She has settled in 100%. She is speaking really well, playing soccer, making friends and doing everything a happy 4 year old should do! She is very loving and a total ham. She is the actress in the family.
But this month reminds us that we adopted this beautiful little girl from a special needs program. I have truly hesitated on what to share and not to share about her special needs as its her story –not mine to share. … We have seen to a bunch of doctors and Ashling has had more testing that most people ever will have. The verdict is she is 100% healthy (which is beyond amazing) but has a tethered spinal cord and a sinus track opening to her spine. If she continued to grow without fixing this, she would likely have serious neurological, orthopedic and urinary problems down the road. Amazingly, she does not have any of them now.
So here we go. One week from today we check into Hackensack University Medical Center for neuro surgery where they will remove her sinus track to the spine, remove her myelmonegocele and untether her spinal cord. We have a great team during the surgery and thankfully her prognosis is that once this is complete, she will be back to herself with no chance of developing the conditions I mentioned.
So here we go…. She should be in the ICU for 3 days and then the regular hospital for a few more and then a few weeks on the couch…. Ill make sure to update once we are done with this and Ashling is back to her smiley self!